Recently I had a lot of pain in my hips due to falling again.  My PT was out doing training and her new adminitrator is terrible and was un-responsive to any of my calls.  After two weeks of terrible pain I finally got in to see her.  My sacrum had twisted in the fall causing the illiac to overlap and the joint.  She was able to put it back for me and I feel better. 

After this happend I though I should see if there is anything else going on with the rest of my spine.  I have a friend that is a cyropractor.  He took exrays of my back and it should that my whole spine had started to rotate due to the nuscle lose, and it was probably the reason I was having so much back pain.  I started tracking theropy two weeks ago and the pain in my hips and lower back has almost disapeared.  I still have muscle tightness in the middle of my back but that seems to loosen up after I swim. 

This Muscular Dystrophy stuff can encompass so many different things.  It can become very frustrating.  I have not written for a while because I have been so frustrated.

Mucular Dystrophy really sucks sometime.  Today I bent down to pick up a pill I dropped and lost my balance and fell to my knees! 

I wan to know if anyone else is having this issue with their pain medication.

The Federal Government has begun to limit the amount of narcotic medicines that can ship to a pharmacy.  No matter if they have legitimate clients that have scripts that need to be filled.  I have two instances in my own family.  I have muscular dystrophy and rely on taking at least one narcotic a day to get through work.  I have been taking the same narcotic Nucynta for over a year now, and have always gone to the same CVS pharmacy.  My script comes from a neurologist that I see every two months to ensure I am not abusing the medication.  For the last three months I have submitted my script to the CVS pharmacy and have been told it will be ordered.  For the last three months the CVS pharmacy has called me to say they cannot get the medication because of new FDA regulations.  They are only allowed a certain amount of narcotics a month and this month the FDA would not allow the distributor to ship my medication.  For the last three months I have had to call all over Lake County IL. to find a CVS that might have it.  There was a month I could not find it at all, and other times I was only able to get less than what my script was written out for.   I have contacted the Caremark Company that manages the CVS stores and was told the exact same thing that the local store told me.  The FDA is severely limiting the supply of narcotic medication that distributors can send out.

My daughter who is disabled due to sever narcolepsy has had the same issue with the Adderall she takes to help her stay awake enough to function on a daily bases.  What are families like mine or those with children that need the assistance of these types of medication going to do once Obama Care really kicks in?