Goverment Control of Pain Medication

Recently I have been having issues with getting my perscriptions filled at the CVS Pharmacies in my area. I take a controlled pain killer once a day to get me through the work day. My scripts are given to me through a Dr. with instructions to take two a day. This would be a 30 day script for 60 pills. The problem is the goverment is controlling everything that is sent out of wharehouses to the pharmacies. I can never get more than 50 pills at any time. Even when I call the pharmacy and tell them I will be bringing in my scripts. I have been told by the Pharmacy that the goverment is controling the flow of every type of medication and only allowing certain amounts to be shipped at any time. I have to believe this to be true because my daughter is having the same issue with the medication she takes. The goverment will not allow enough medicine to be shipped to one pharmacy for her to fill her scripts. Sha has to call all over the county to find a Pharmacy to fill them. She will gey one filled at one place and then have to have the other filled in the next town. I have had to go twice now just to find any pharmacy that has any amount of my medicine. If they are doing this to me I would like to know if anyone else has this issue. Why is there no media attention on this issue. Another Obama way of controling the masses.

Looking For Alternet Support

Resently my PT went to a week long training seminar. During her trip I fell and really messed up my hip again. I reached out to a friend of the family who is a Chiropractor. He worked on the hip and was able to put it back into place. He uses a form of traction that opens up the vertabra and straightens out the vertabra. That one visit convinced me to begin seeing him once a week. I continue to see my PT once a week as well. My back has felt really good using a combination of both types of Therapy. When Obama care kicks in I think we are all going to be screwed over and denied any type of PT.

Recently I had a lot of pain in my hips due to falling again.  My PT was out doing training and her new adminitrator is terrible and was un-responsive to any of my calls.  After two weeks of terrible pain I finally got in to see her.  My sacrum had twisted in the fall causing the illiac to overlap and the joint.  She was able to put it back for me and I feel better. 

After this happend I though I should see if there is anything else going on with the rest of my spine.  I have a friend that is a cyropractor.  He took exrays of my back and it should that my whole spine had started to rotate due to the nuscle lose, and it was probably the reason I was having so much back pain.  I started tracking theropy two weeks ago and the pain in my hips and lower back has almost disapeared.  I still have muscle tightness in the middle of my back but that seems to loosen up after I swim. 

This Muscular Dystrophy stuff can encompass so many different things.  It can become very frustrating.  I have not written for a while because I have been so frustrated.

Mucular Dystrophy really sucks sometime.  Today I bent down to pick up a pill I dropped and lost my balance and fell to my knees! 

I wan to know if anyone else is having this issue with their pain medication.

The Federal Government has begun to limit the amount of narcotic medicines that can ship to a pharmacy.  No matter if they have legitimate clients that have scripts that need to be filled.  I have two instances in my own family.  I have muscular dystrophy and rely on taking at least one narcotic a day to get through work.  I have been taking the same narcotic Nucynta for over a year now, and have always gone to the same CVS pharmacy.  My script comes from a neurologist that I see every two months to ensure I am not abusing the medication.  For the last three months I have submitted my script to the CVS pharmacy and have been told it will be ordered.  For the last three months the CVS pharmacy has called me to say they cannot get the medication because of new FDA regulations.  They are only allowed a certain amount of narcotics a month and this month the FDA would not allow the distributor to ship my medication.  For the last three months I have had to call all over Lake County IL. to find a CVS that might have it.  There was a month I could not find it at all, and other times I was only able to get less than what my script was written out for.   I have contacted the Caremark Company that manages the CVS stores and was told the exact same thing that the local store told me.  The FDA is severely limiting the supply of narcotic medication that distributors can send out.

My daughter who is disabled due to sever narcolepsy has had the same issue with the Adderall she takes to help her stay awake enough to function on a daily bases.  What are families like mine or those with children that need the assistance of these types of medication going to do once Obama Care really kicks in? 

Recent Update

Pistol Shooting

Yesterday I went shooting pistols with my brother.  I took advil before I left and did pretty good as far as the pain.  I did not have to do a lot of walking so I did not take my cane in with me.  I felt pretty good when I got home and did not have to take anything stronger than the advil I took earlier. Then I was woken up during the night with incredible pain in and around my ear and down my neck.  I thought I had an ear infection.  It was that type of pain.  I saw the Dr. at the Sick call this morning and she told me my ears were clear.  She said it sounded as if a muscle pulled in my neck and up into and around my ear.  I know weird.  Lesson learned. always stretch out the neck before shooting.Shooting is still one of the sports I can still do, and I really enjoy it.  I have started to notice that my arms and shoulders get tired faster than they used to when I shoot.

Working with a good Doctor

I mentioned earlier that I had found several good doctors and a great therapist.  I have an internest that I see now every six months to make sure I am doing ok and to have my blood work done.  The first time I saw him I was pretty much given up finding a doctor that cared more than just 5 minutes.  I had seen the staff at the MD clinic and had heard everything they said before.  I could not find someone that was willing to listen to how my body was feeling.  Sure I have MD, I know I am supposed to feel sore and have all the MD issues.  I am not talking about how I felt with my MD.  I am talking about how my body over all felt.  I felt lit crap and I know there had to be more going on besides MD.  I was the first MD patient Dr. S. ever had.  I was about willing to give up ever finding a doctor that was interested in me and not my MD.  I told him how crappy I felt all the time.  He listened and said – well it is time to figure out if anything else is going on.  He did a full blood panel on me and found that I had other things going on that would cause some of the symptoms I had.
My testosterone level was so low that it did not register
My Vitamin D level did not register
My thyroid was barely working
My Vitamin B barely made it on the charts.
There really were other things going on besides my MD.  Who know if it is all tied together, but the body is so unique that I feel everything is related.
I started on testosterone, thyroid medicine and all the different vitamins I could find. I also take pain killers twice a day and a muscle relaxer twice a day.
Physically I feel better than I have for a sometime. 
Get yourself a great Dr. who is interested in you and who is willing to do research on your illness.